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Haemophilia Society UK

The International Patient Organisation for Primary Immunodeficiencies (IPOPI)

IPOPI came into being as a result of an initial meeting in Oxford, UK, in September 1990, when an interim organising committee was established and a further meeting two years later in Lugano, Switzerland, when IPOPI was formally established.


IPOPI has the following objectives:

  • To ensure optimal access to early diagnosis & care
  • To develop, strengthen and support National Member Organisations
  • To enhance IPOPI and PID visibility globally
  • To increase efficient governance of a well resourced developing organisation


Please click here for a link to the IPOPI Website for further information.

Haemophilia Society UK

“The Haemophilia Society is the only national and independent organisation for all people affected by bleeding disorders. The Society is led by affected people and works in close partnership with the NHS. We provide information and support for all people affected by bleeding disorder and represent their interests.”


For more information, please visit: www.haemophilia.org.uk